My Psychiatrist prescribed me sleeping pills recently to try and help with my very disruptive sleep patterns.
I don’t take them every night but the first couple of times I did take them I actually slept like 7 hours…in a row!!
But with any of my past experiences taking sleep meds, usually after about 3 days or so, I seem to become immune to them and history repeats itself and eventually they just stop working.
So my Psychiatrist suggested that maybe I alternate between 2 different kinds to try and avoid building up an immunity to one particular brand.
The secondary pill he prescribed is pretty new on the market and came with a bit more risk to me when it comes to its long laundry list of potential side effects. Something I have to be very vigilant of given my history with most medications I take.
I tried taking them once or twice a couple of weeks ago and found that it made me extremely groggy and unfunctionable the next day. I decided to just save them for nights where I really feel I need one.
Last night felt like one of those nights that warranted me taking one. I was having a bad night and feeling super anxious and emotional. I also hadn’t slept the night before because I have been experiencing severe pain throughout my entire body the last few days which I believe to be a side effect from the recent increase in my anti-anxiety medication and I was almost too afraid to fall asleep.
So Rich gave me the sleeping pill about 10pm. An hour or so later I could feel myself slowly drifting off to sleep, or so I thought.
My eyes were closed but then suddenly my arms and legs felt very tingly, I felt very weighted down under my weighted blanket, I kept trying to move but couldn’t and then my body went almost numb.
I felt paralyzed and for the next hour and a half I began hallucinating and became extremely paranoid.
I remember all of it. Every noise I heard and every image I saw including the one of a gun pointing directly in my face.
My body may have felt very disconnected but my mind was still very much aware of my surroundings. I was completely conscious yet felt helpless against the danger I kept feeling I was in.
It was terrifying.
Our brains can have a very cruel sense of humour sometimes. My body is so damn sensitive to drugs of any kind and that’s no joke. It’s really making me reconsider my decision to begin Ketamine treatment next week even more.
I could hear myself trying to speak aloud at times but the words weren’t always coming out of my mouth. I couldn’t catch my breath. I kept trying to take deep breaths but I was gasping for air each time I did. Those desperate and very loud gasps for air was what brought Hannah anxiously running down the hall from behind her closed bedroom door to see what was going on.
One minute I’d be hysterically crying and the next moment I was hysterically laughing.
Maggie kept trying to lick my face. Her tongue felt like it was on speed. She could sense that there was something wrong.
Rich held my hand the entire time trying desperately to calm me down while at the same time laughing hysterically alongside Hannah at some of the nonsensical and I gather from their outbursts of laughter, very comical things that I kept saying.
Laughter was all that was holding them together. I guess that’s why they say it truly is the best medicine.
**If you missed my blog yesterday about my upcoming Ketamine treatment please go to: https://youareenough712.wordpress.com/2021/10/05/ketamine-again/
Before I sat down to write this today I was planning on doing another Vlog. (Note: I actually wrote this and intended to post it yesterday before I found out that Facebook and Instagram had both crashed!). I thought I needed to maybe hear my own voice again today but I’m just too vulnerable right now and so I wrote my words out instead.
My Psychiatrist increased my new medication again late last week with the intent to get it to a therapeutic dose soon. It’s an anti-anxiety medication which I mentioned I would be starting a few weeks ago. As of yet I can’t say that it’s really been helping me. So for now I will just add it to the long list of failures.
Yesterday was a pretty bad day all around for me. My anxiety was very high which then turned to panic, crying, rumination and an increased amount of thoughts of death and dying.
As I also mentioned recently my Psychiatrist had put a plan together for me when we spoke a few weeks ago. It included this new anti-anxiety medication and it also included treatment for Ketamine…AGAIN which has been scheduled to start early next week.
So for those of you who don’t know what Ketamine is I will give you a quick explanation here. For starters, it’s actually a very potent and sometimes deadly street drug known as “Special K”. It is also apparently used as a horse tranquilizer but most commonly it is found in anesthetic.
I’m not gonna bore you or put you through a science class today but people living with Depression are known to have “abnormal brain plasticity”. Continued studies and research have shown that using Ketamine can help to remove the “negative receptors” in our brain and then it like “plants a seed” in your brain which allows for new “neuropathways” and positive neuroactivity to grow and flourish.
Studies have shown that by using Ketamine to treat Depression there has been a 60% success rate so far and unlike anti-depressants it is supposed to work faster and more effectively.
Now let me go back for a second here and explain (for those who may not already know) what I meant before when I said I am scheduled to begin Ketamine treatment…AGAIN.
Several years ago during an inpatient stay at Sunnybrook Hospital I was asked to take part in a Clinical Trial for Ketamine. I had never heard of it before but I was the perfect candidate though because it is used mostly on patients who suffer with Treatment Resistant Depression like I do. I happily and very naively agreed to try it. I figured I had nothing else to do seeing as I was in the hospital anyways.
I filled out a ton of paperwork, spoke in depth and several times with the Psychiatrist in charge of the study. I filled out many questionnaires with his Associates. After I was given approval to begin the study I was scheduled to start the 1st of 6 treatments the very next day.
They told me during the initial consult that the Ketamine would be administered through an IV and that I would have to lay there in the OR attached to an IV drip for 45 minutes and then kept for observation for another 30 minutes following. Before we began the process I asked the Anesthesiologist if I would feel anything. He said you may feel a bit woozy.
Well woozy was an understatement because for the next 45 minutes I lay on the cold table hallucinating, feeling disassociation and seeing psychedelic images flash before my eyes. It felt like a complete out of body experience with flashbacks as far back as my childhood.
I hated every bloody second of it and couldn’t wait for it to be over. The next day I met with the Psychiatrist to discuss how it went and we both agreed it was probably best that I don’t continue with the study. Another epic fail.
Now let’s fast forward to March of 2020. My current Psychiatrist happens to be the Medical Director of 2 Ketamine clinics in the GTA and has studied it’s effectiveness on Treatment Resistant Depression for several years now.
Back in February or March of 2020 (everything is kinda a blur now) we began another discussion surrounding Ketamine and he asked me if I would be willing to try it again as with more scientific research and studies conducted it was now available in a nose spray form. And less invasive.
He told me he would administer the 1st dose in his downtown office at the hospital he works out of to ensure I tolerate it and that the following 5 doses could be picked up at a local compounding pharmacy and be administered under the supervision of my husband in the comfort of my own home.
I agreed to try it AGAIN cause well, I try almost everything at least once when it’s come to my treatment or in this case twice.
We were scheduled to begin the 1st treatment on March 15th 2020 at 6:00 p.m. It never happened. And if you have been following my journey very recently I kinda just let things slide from there once the pandemic hit.
As most of you know though I reconnected with my Psychiatrist a few weeks ago at which time he told me that patients were no longer allowed to administer the nose spray at home. The whole idea had been kiboshed over the past year as research had shown that it was a liability and quite dangerous to do so. But I guess it’s OK because since March of 2020 Ketamine is now available in an even less invasive form, a pill which is dissolvable under the tongue but still can only be administered under the watchful eye of a doctor/nurse.
So I guess as they say, three times a charm as I have agreed to try it…AGAIN. The six sessions are to be completed at a clinic in Toronto (there is also a clinic in Mississauga too). Each session will take between 2 to 3 hours from start to finish to complete and I am not allowed to drive home afterwards. They actually recommend you don’t drive for 24 hours following. The sessions will take place twice a week for two weeks and once a week after that.
Although I’ve agreed to try it again given I feel like I’m running out of both viable options and steam, but I have been told by my doctor that I am very likely to still feel those same hallucinations and disassociative feelings that I don’t like. I’ve done many other treatments and have tried many hallucinogens over the last several years. I don’t like feeling as though I’m tripping out on LSD.
I’ve been consumed with very negative thoughts for several days now (surprise, surprise) since booking my treatment. I’m experiencing extreme anxiety and feelings of overwhelming guilt and lets not forget those feelings of being a burden that weigh me down too. I’m questioning my decision to do this again for many, like OH MY GOSH, too many reasons.
For one, it’s still very new and likely not to be a forever cure from what the current research shows. I will very likely need to continue on some type of maintenance program after the six sessions are done. But like how long term? And does anyone even know what the long term effects of it could be, especially cognitively. As it is, I did ECT (Electroconvulsive Treatment) several years back. Probably the most invasive and scariest treatment I’ve done. The eight treatments I did fucked me up royally. It fried my short term memory, my ability to recall many things and I find myself often forgetting what I was talking about mid…sentence.
But at the same time Psychedelics seem to be the wave of the future for treating mental illnesses and especially for people like myself who are treatment resistant. I’ve even tried “shrooms” in a pill form, but couldn’t tolerate the hallucinations it caused, although my Psychiatrist is also currently working on many new studies and its amazing effects on Treatment Resistant Depression as we speak.
I’ve tried so many different treatments over the past seven years and how I see it, I have failed them all, many of which have cost a shitload of money because they were not covered by either Ohip or insurance, Ketamine now included. I wish I could understand why if there is such a need for these treatments and Ketamine for one has one of the highest success rates among all treatments including anti-depressants then why has it not yet become part of the mainstream health care system so that more people can have access to it? I know, dumb question.
It’s an expensive treatment, especially if it becomes ongoing. It’s an expense we really can’t afford at the moment and just adds to the extraordinary guilt I already live with on a daily basis. The “what if” I’m not part of that 60% success rate, the “what if” yet another attempt fails and we throw away even more money that we don’t have. How can I live with that on my conscience?
The answer is, I can’t.
I’ve carried on and on AND on the last few days with all the other reasons as to why I also shouldn’t do it as well and feel like a burden yet again to my family by having to take me and sit with me for 2 to 3 hours (plus the 30 plus minute drive there and back) while I have my treatments.
These are very real struggles for me which of course my Psychiatrist tried to remind me the other day as I rambled on about all my reservations that I’m having that it’s my Depression talking and that my Anxiety is happily cheering him on. I can’t let them win.
But it’s so fucking hard though and the noises in my head are loud as hell. It’s literally killing me.
They keep telling me I don’t deserve to live a life free of chronic Depression, debilitating Anxiety and daily thoughts of Suicide. They keep telling me I’m just gonna fail at this attempt too. They keep telling me to give it up already and that I’ve already used up my many chances at recovery over and over AGAIN. Like why would this time be any different?
Thanks for listening to me today. I so appreciate the extra set of ears. Somedays the best medicine is just knowing that someone is there listening to my very real and terrifying emotions with only the purest of intent.
I spent this afternoon warding off a wicked headache while doing my best to relish in the final moments of my weekend “time-out”.
But when you live with Depression and Anxiety, often the simplest things or the simplest tasks feel way too overwhelming.
Most of the things I plan for in my week honestly never get done, even the ones which bring me joy.
Whether it be preparing a meal for my family, doing a load of laundry, a coffee break with a friend (I don’t actually drink coffee though) or making a quick trip to the grocery store has me crippled with fear.
I become paralyzed.
Frustrated, angry, anxious, sad.
I tell myself I will try again tomorrow.
I move things around on my calendar almost daily, even if it’s to remind myself to call a friend back who probably left me a message 3 days earlier.
I promise myself I will do it tomorrow for sure.
And then tomorrow comes and everything goes out the window once again and instead I end up reminding myself how worthless I am, how useless I am, how burdensome I am and how much better off everyone would be without me.
Today there are no scenic #summerofrich pictures of waterfalls or the beauty of nature to show off, instead today you are seeing a picture of me doing something else.
Something else that brings me as much joy as going for a hike in nature or taking in the beauty of a waterfall.
Something else that brings with it a sense of calm just like when I’m out exploring nature or taking in the beauty of a waterfall.
But I didn’t do it alone, I couldn’t do it alone as much as I’ve tried to for many weeks now. It’s paralyzing. It’s as though my car is paralyzed too.
Over the last few years reading has become an important part of my self-care regime and call me old-school but I much prefer to go to a bookstore than order a book online.
When I enter a bookstore I feel like the world around me is put on pause. I’m suddenly in a world of imagination and make believe. I can get completely lost in the moment as I slowly stroll up and down each aisle, sifting through the pages of someone else’s story.
I am beyond overwhelmed with so much gratitude from all the beautiful and heartfelt messages of love and support I continue to receive on a daily basis from all of you. And the check ins are so incredibly appreciated.
I am especially grateful right now knowing that my platform is reaching so many people from all across the Globe and that by me sharing my personal journey with all of you is giving permission to someone else like myself to have a safe place to turn to when they are looking for support for themselves or may be in dire need of a shoulder to lean on, a listening ear; without judgment and some reassurance that they are never alone.
But at the same time I am also so incredibly sad knowing just how many people, whether it be a stranger or someone I know that are out there suffering in silence.
But I love helping others and helping others really helps me too.
Even when I’m at my lowest.
This week has been excruciatingly painful for me as you probably know by now (if you missed my Vlog yesterday please feel free to check it out).
I can honestly say that I have no more tears left in me.
I am beyond overwhelmed, I feel empty inside and emotionally defeated.
So I have made myself a promise that I am going to do my best to treat this weekend as a “time out” for myself and I guess the “timing” couldn’t be better because for the first time in over 18 very looooong months the kids will all be gone for the weekend.
Taking care of me will be my top priority this weekend which will include our first #summerofrich “Fall Edition” of the season but first up on the agenda tonight is also another “first” in over 18 looooong months; Date night with Rich at my favourite restaurant using the gift card I received for my birthday (which was 3 months ago already) from a couple of my many beautiful friends. I guess I’ve been holding on to it for that perfect moment.
My Psychiatrist prescribed me an anti-anxiety medication last week as part of my new treatment plan. It’s been several years now since I’ve taken any kind of prescription medication at all to help treat my illness but I agreed to try this in hopes of finding even the slightest bit of relief because asides from my symptoms of depression and suicidal ideations becoming increasingly more and more active and beyond my control over the past month, so too has my anxiety and panic (do you know what it feels like to want to climb out of your skin?).
I began taking them on Saturday morning.
My doctor had told me during our Zoom call a couple of days earlier that I’d need to take one pill every morning and one pill before bed every night and to then increase the doses to two pills in the morning and two pills before bed after a few days. But just to be clear here, it was actually Rich he was giving the information to, not me, as Rich has been under strict instructions from any and all of my doctors to keep all of my medications out of my reach (like that of a toddler) ever since I began to abuse my use of prescription drugs several years ago.
I thought I was okay with all this because this medication was not considered an antidepressant as I have made it super clear to every new Psychiatrist I’ve encountered over the past many years, whether it be in a hospital setting or in a Doctor’s office that I no longer wish to be prescribed any more antidepressant drugs, EVER, after experiencing the excruciating side effects they had caused both my body and mind over a period of several years of trial and error which ultimately led to my diagnosis of Treatment Resistant Depression.
So I thought I was okay with all this.
But by Sunday morning when I awoke to another pill sitting by my bedside table which Rich had left there for me to take, I suddenly realized that I was not okay with it and by Sunday evening those feelings turned to rage as I went frantically searching throughout the house for his hiding spot in hysteria (he had stepped out of the house for a half an hour and I saw it as my golden opportunity).
To be honest though, I’m not really even sure what I was trying to accomplish had I found my stash of pills (including sleeping pills which I was also prescribed and has actually been helping me to get some sleep) but I became inconsolable and in that very moment all I could think of was finding the pills so that I could finally unburden Rich of me once and for all.
I didn’t find them.
It’s now 1:30 AM Tuesday morning as I write this. I could be fast asleep by now had I already taken my new sleeping pill that is sitting by my bedside table but instead I’m lying here in tears, scared and feeling like I don’t want to continue with our agreed upon plan, none of it.
I’ve been laying here in the dark for hours just staring at the pills which Rich left by my bedside table deciding whether or not to take them. And the demons in my head are dancing around claiming their victory (kinda like the Liberal party in Canada is doing right now as well).
I did eventually shut down the demons bantering just long enough to take them. But I’m not okay with all this, even if I know in my heart it is for my own safety and for the good of my health.
To be honest I am feeling very triggered right now ever since I came across this revelation earlier this morning because in my mind I don’t see myself as a wife deserving of appreciation, I just see myself as a burden to everyone, especially my spouse.
My memories on Facebook this weekend have been flooded with one of the most incredible nights of my life two years ago when I was invited as the Guest of Honour at a launch party for my new children’s book “Where Did Mommy’s Smile Go?”. I was surrounded by so much love and appreciation.
One of the memories that came up today happens to be the speech that Rich gave that night. I’ve read it probably ten times already this morning as I try to battle with the demons in my head who keep telling me that I’m not worthy of the love and commitment and appreciation others have for me, especially my spouse.
I wanted to reshare those words with you today that were so eloquently spoken from the heart by Rich, to me, his wife in hopes that the demons in my head get the message!
P.S. For all of you reading this who have an imperfectly perfect wife, make sure you remind them today, tomorrow and forever how thankful you are to have them in your life; I may not always believe it but I am certainly one of the lucky ones because Rich never stops trying.
As most of you know I am by no means the writer in our home and my press secretary has been busy working on her own speech all week, so here goes nothing!!
I first met Kim when she was just 18 years young and she began working at the video store I was managing in Thornhill. She caught my eye right away but unfortunately there were MANY challenges standing in our way. Besides the fact that she had a boyfriend at the time and I was busy fending off some lovestruck sociopath, I was now her boss as well, but those didn’t even come close to the biggest challenge we were facing. Ya see, I was close to 9 years older than her (8 years, 7 months and 16 days to be exact). And now that I have 2 daughters of my own who are in and around that same age I can TOTALLY see that challenge from a very different perspective!
But with a combination of male ego, unyielding determination, mixed in with a spoonful of testosterone sometimes you just have to say Screw It and ignore what the haters may think or say and just go for it! By now Kim was just shy of her 20th birthday and had this been in some medievel time she would have likely been considered an old maid already so I saw this as my golden opportunity. But I am still waiting for that dowry!
We recently celebrated 24 years of marriage this past spring and have 3 beautiful kids to show for it, one of whom is busy drinking his way through Europe with some friends as I speak. And like in every marriage or as every parent can attest to there will always be challenging times along the journey which for us surfaced 5 and a half years ago when Kim first took ill.
I have known Kim now for 30 years and have watched her grow and change in so many ways but one thing that has never changed in all the years I have known her is that she has the kindest heart, and she has so much determination and so much will. I know that Kim no longer sees these incredible attributes within herself because of what depression has taken from her but lucky for her there are so many people in her life who love her enough to ensure that she can see what an incredible person she truly is.
I am so proud of you Kim. Jacob, Hannah and Rachel are so damn proud of you too. You may not see what we all see in you but I will keep reminding you of it every single day for the rest of our lives. You may not see that what you do for so many people by writing your blog and opening up to the world about what it truly feels like to battle with major (and treatment resistant) depression and SEVERE anxiety and panic every single day. You may not see how your vulnerability and honesty has helped so many others feel less alone and you may still not be able to call yourself an author and believe it to be true but you are an author, I mean City TV interviewed you for the six o’clock news last night if that isn’t proof enough!
But you know why you are an author…because you had a vision, because you have such a creative soul, because you are so kindhearted and because you have such an unyielding determination and innate will to help others. You have accomplished more than so many others because of all that. You have made your dream come true even through the darkest days of your life. You have found your purpose.
Look around the room tonight Kim and see all the love surrounding you, they aren’t just here for the free food and drinks! They are here to celebrate you!
Jacob Hannah Rachel and we can’t forget Maggie (our dog) and I love you to the moon and back! And now without further ado…let me introduce to you, my beautiful wife and best friend.. children’s author Kim Fluxgold!
Fact: Most people who take their own life don’t really want to die, they just want to stop hurting.
So then what is the alternative when your pain is just too unbearable to handle and you feel so hopeless? Or helpless? Or empty inside? Or you can no longer live in the skin you’re in?
These are all questions I’ve asked myself over and over again for many years now. I’ve attempted suicide before and every time there has always been a voice inside my head begging me to stop or telling me that perhaps today may not be the perfect day to carry out my plan afterall and then they silently pray that I haven’t gone too far this time.
The last few weeks have been some of the most trying and horrifyingly scary days for me and for many of my loved ones as well.
I have been consumed with active thoughts of suicide, day and night and way more than usual. That voice inside my head has been watching me closely, as have the demons as well. The voice has been listening to me come up with a perfect plan and doing everything in its power to distract me from the demons in my head who keep egging me on while dangling a bottle of pills in front of its face.
Yesterday felt too much, once again. I knew I felt unsafe and Rich could sense it. He asked Hannah to drive me to the hospital as she was the only one home with me at the time. I did what I’ve had to do many times before when the pain is just too unbearable. When I feel most hopeless and helpless and empty. I seek safety.
The emergency room doctor I spoke with was kind and supportive. She put me on a Form 1 which panicked me and meant that I could not leave the hospital for my own safety which also meant having security guards standing outside the room I was in for my own safety.
After spending some time with the doctor she put in a request for the Psychiatric team to come talk with me further and figure out a plan.
The Psychiatrist was a gentle and very understanding soul. We talked in length about what’s been going on, some of my history and of course whether or not I should be admitted to the Psych floor for further observation.
Here’s where things get more complicated for me and besides the panic of having my phone taken away from me while in-patient this is where I begin to tell myself again, it’s hopeless because I’m helpless.
I have not been on meds for my depression for several years now. They have not worked for me, all twenty plus of them. Infact most of the meds caused further damage both mentally and physically.
From my experiences with in-patient Psychiatric care it mostly comes down to medication and finding a balance that could potentially help me find my balance. I won’t do it again. I tried for many years and it just led to a further diagnosis of Treatment Resistant Depression.
Since my last visit to emerg a few weeks ago (where I thought I’d give the new hospital close to my home a try, but never again!) I have been waiting for an appointment to see my Psychiatrist I’d been with since before the Pandemic began. In fact it was March 15th 2020 that I had a scheduled appointment to see him and for him to begin a new treatment with me. It was cancelled and I just stopped going. I got anxious about going especially to the one hospital in Toronto that was consistently on the news for the amount of Covid outbreaks they were having.
It’s now been over a year since seeing him, so I needed my GP to fax another referral to him. I haven’t heard anything as of yet and as I began to spiral even further over the past few weeks since my last visit to emerg I stopped caring because the hopeless feelings, the helplessness, the emptiness made me believe there was just no point anymore in trying because aside from all the medications, I’ve also tried probably 50 other types of treatments as well. You name it, I’ve done it. So why would this treatment be any different?
Well the Psychiatrist I spoke with last night came up with a plan with his team for me regardless of me telling him I’m helpless because he was certain that I’m not. He also told me that whenever I feel like I did yesterday or days previous that I am always welcome to come in just to sit in a quiet room and speak with their team and just get through the moment.
He made me promise to continue to reach out to my safety net as well when I am at my breaking point. He also said something to me that I haven’t been able to get out of my head right before he agreed to cancel my Form 1 and release me from the wolves standing on guard outside my door.
I had told him during our initial conversation how I have found purpose in writing and blogging and educating people on mental illness and advocating for others who are just like me to do whatever is needed to seek care. He told me it’s a wonderful thing that I am doing for others, and very selfless and important and much needed work but he then said “But now it’s time that you start advocating for yourself as well”.
This he said, includes (with the help of Rich and my GP) that I get in touch with my Psychiatrist immediately to reinvoke our plan from last year and that I make sure to follow up with my GP on the plan he will be forwarding to her today as well for her to distribute a new anti-anxiety medication to me and to refill the sleeping pills he gave me which Rich will once again be burdened with to keep in a safe place and distribute them to me.
Thank you all for your continued love and support. My apologies for not getting back to each one of you individually who took the time once again to comment on my posts or send me words of encouragement to me privately. I am overwhelmed right now and allowing myself to heal today in private.
As ere of Yom Kippur (the holiest day of the year in the Jewish calendar) begins this evening I am praying to find forgiveness within myself and will take this time to reflect on today in order to find the beauty in tomorrow.