I have spent the better part of the past few days since my visit to emerg trying to process everything while still desperately figuring out whether or not I even have the strength anymore to keep going.
The Psychiatrist who was assigned to my care the other day was a very special and very rare find as far as any encounter I’ve ever had with a Psychiatrist in an emergency room before. He went above and beyond anything I have ever experienced during a visit to emerg and trust me when I say I’ve had my fair share of experiences.
You see, it’s very difficult to advocate for yourself when you don’t believe that you are worthy enough or deserving of.
Knowing how overwhelmed I was feeling and knowing how hard it is for me to even complete the simplest of tasks (scheduling appointments being one of them), Rich took it upon himself to help jump start the process of self-advocacy the very next morning, starting with making a follow up call to my GP’s office on my behalf, hoping that she could somehow escalate an appointment quicker to see my Psychiatrist.
That’s when he learned that the referral he’d requested 3 weeks earlier in order for me to make an appointment with my Psychiatrist because I hadn’t seen him in over a year had never been sent out.
She had been on vacation that week but Rich was assured it would be sent as soon as she was back in the office the following week.
Upon learning the disappointing news that it had never been sent out, Rich was assured again the other day that it would be taken care of right away. He waited a few hours to give my doctor’s office some time to fax it over and then he called the office of my Psychiatrist to make me that appointment. They still hadn’t received the referral and still would not make the appointment without it even though I was already his patient but just hadn’t seen him since last year when the new treatment I was scheduled to begin the week of March 15th 2020 was abruptly cancelled due to ya know, a Pandemic!
Feeling frustrated and desperate and very impatient by now, Rich said screw this bullshit and sent an email directly to my Psychiatrist himself to explain what’s been going on.
Within a few hours of sending him the email my Psychiatrist answered Rich’s pleas and copied his two assistants on the email asking that they schedule me in for an appointment to speak with him after hours the very next day on Zoom.
So late yesterday afternoon, feeling emotionally drained from the past few days and hungry from fasting all day being that it was Yom Kippur I finally reconnected with my Psychiatrist. A true gem and another rare find.
We spoke for the better part of an hour where along with Rich’s input a new plan was put into place immediately including a plan to pick up where we had left off last year and have his assistants schedule a first appointment at one of his other clinics to begin the treatment I was to start in March of 2020.
There have been many changes to the treatment’s protocols and the actual administration of it as well and not just due to Covid but several other factors that have come into consideration since then while conducting many clinical trials. The treatment itself has also evolved as well due to more and more research and scientific discoveries.
I’m still really overwhelmed and mentally exhausted right now to say the least and filled with so many mixed emotions today.
I’m so appreciative and grateful though for all the incredible support I have in my life (especially you Rich 💚), even if I may not feel worthy enough or deserving of it.
Fact: Most people who take their own life don’t really want to die, they just want to stop hurting.
So then what is the alternative when your pain is just too unbearable to handle and you feel so hopeless? Or helpless? Or empty inside? Or you can no longer live in the skin you’re in?
These are all questions I’ve asked myself over and over again for many years now. I’ve attempted suicide before and every time there has always been a voice inside my head begging me to stop or telling me that perhaps today may not be the perfect day to carry out my plan afterall and then they silently pray that I haven’t gone too far this time.
The last few weeks have been some of the most trying and horrifyingly scary days for me and for many of my loved ones as well.
I have been consumed with active thoughts of suicide, day and night and way more than usual. That voice inside my head has been watching me closely, as have the demons as well. The voice has been listening to me come up with a perfect plan and doing everything in its power to distract me from the demons in my head who keep egging me on while dangling a bottle of pills in front of its face.
Yesterday felt too much, once again. I knew I felt unsafe and Rich could sense it. He asked Hannah to drive me to the hospital as she was the only one home with me at the time. I did what I’ve had to do many times before when the pain is just too unbearable. When I feel most hopeless and helpless and empty. I seek safety.
The emergency room doctor I spoke with was kind and supportive. She put me on a Form 1 which panicked me and meant that I could not leave the hospital for my own safety which also meant having security guards standing outside the room I was in for my own safety.
After spending some time with the doctor she put in a request for the Psychiatric team to come talk with me further and figure out a plan.
The Psychiatrist was a gentle and very understanding soul. We talked in length about what’s been going on, some of my history and of course whether or not I should be admitted to the Psych floor for further observation.
Here’s where things get more complicated for me and besides the panic of having my phone taken away from me while in-patient this is where I begin to tell myself again, it’s hopeless because I’m helpless.
I have not been on meds for my depression for several years now. They have not worked for me, all twenty plus of them. Infact most of the meds caused further damage both mentally and physically.
From my experiences with in-patient Psychiatric care it mostly comes down to medication and finding a balance that could potentially help me find my balance. I won’t do it again. I tried for many years and it just led to a further diagnosis of Treatment Resistant Depression.
Since my last visit to emerg a few weeks ago (where I thought I’d give the new hospital close to my home a try, but never again!) I have been waiting for an appointment to see my Psychiatrist I’d been with since before the Pandemic began. In fact it was March 15th 2020 that I had a scheduled appointment to see him and for him to begin a new treatment with me. It was cancelled and I just stopped going. I got anxious about going especially to the one hospital in Toronto that was consistently on the news for the amount of Covid outbreaks they were having.
It’s now been over a year since seeing him, so I needed my GP to fax another referral to him. I haven’t heard anything as of yet and as I began to spiral even further over the past few weeks since my last visit to emerg I stopped caring because the hopeless feelings, the helplessness, the emptiness made me believe there was just no point anymore in trying because aside from all the medications, I’ve also tried probably 50 other types of treatments as well. You name it, I’ve done it. So why would this treatment be any different?
Well the Psychiatrist I spoke with last night came up with a plan with his team for me regardless of me telling him I’m helpless because he was certain that I’m not. He also told me that whenever I feel like I did yesterday or days previous that I am always welcome to come in just to sit in a quiet room and speak with their team and just get through the moment.
He made me promise to continue to reach out to my safety net as well when I am at my breaking point. He also said something to me that I haven’t been able to get out of my head right before he agreed to cancel my Form 1 and release me from the wolves standing on guard outside my door.
I had told him during our initial conversation how I have found purpose in writing and blogging and educating people on mental illness and advocating for others who are just like me to do whatever is needed to seek care. He told me it’s a wonderful thing that I am doing for others, and very selfless and important and much needed work but he then said “But now it’s time that you start advocating for yourself as well”.
This he said, includes (with the help of Rich and my GP) that I get in touch with my Psychiatrist immediately to reinvoke our plan from last year and that I make sure to follow up with my GP on the plan he will be forwarding to her today as well for her to distribute a new anti-anxiety medication to me and to refill the sleeping pills he gave me which Rich will once again be burdened with to keep in a safe place and distribute them to me.
Thank you all for your continued love and support. My apologies for not getting back to each one of you individually who took the time once again to comment on my posts or send me words of encouragement to me privately. I am overwhelmed right now and allowing myself to heal today in private.
As ere of Yom Kippur (the holiest day of the year in the Jewish calendar) begins this evening I am praying to find forgiveness within myself and will take this time to reflect on today in order to find the beauty in tomorrow.
I hear you. I see you. I feel you. I appreciate you.
I am truly blessed knowing how many people I have in my life who genuinely care about my well-being.
I’ve read each and every message (both from my Social Media feeds and those who messaged me privately as well) probably a dozen or more times by now since sharing with you a very heartfelt and vulnerable blog I wrote yesterday.
I cried alot.
I smiled too.
Today is World Suicide Prevention Day. I know I am struggling alot right now and I’m finding it more and more difficult to cope with my very dark and overwhelming thoughts of suicide.
I want you to know that it’s okay to acknowledge that things may not be okay. That you may not be okay.
Just know that YOU are not alone.
Yesterday one of the private messages I received from a friend was a short animated video clip written and narrated by Brene Brown (who I admire so much) after reading my blog because she thought it perfectly summed up what I had written. The clip emphasizes the important differences between empathy and sympathy and how showing empathy towards others “fuels” connections, whereas sympathy does not. Empathy is about feeling “with” people. It’s about reaching out to someone for help and having that person say “hey, here I am”. “You’re not alone”. It’s not about looking for the silver lining (a perfect example from my blog yesterday would be someone saying to you “well at least you don’t have Cancer” when you tell them you are feeling depressed). It’s about being honest and saying I’m glad you told me. It’s not about the response, it’s about the connection.
As difficult as this week has been for me I know in my heart that I need to keep writing and sharing my journey, probably now more than ever.
We all need to do our part to raise more awareness, educate others and help reduce the stigma; and yes we NEED to talk about suicide too.
Asking someone about suicide will help break the silence and can save a life.
Take a moment today to connect with someone who may be struggling right now. Let them know you hear them. You see them. You feel them. You appreciate them.
Start a conversation and then keep it going; today, tomorrow and the day after tomorrow and the day after that too.
I also wanted to let you know that my book “Where Did Mommy’s Smile Go?” is now available for purchase at Batner Bookstore at 180 Steeles Ave. W. in Thornhill (or through me as well). They specialize in new and used textbooks, workbooks, study guides, course materials and literature. It’s a perfect addition to any classroom, library or children’s bookshelf especially as we begin another uncertain school year ahead and when so many children and caregivers are facing the worst mental health crisis of our lives.
Thank you from the bottom of my heart for being a part of my journey. The good, the bad and the ugly. I love you all so much. #shabbatshalom
Not everyone around you will understand your journey and maybe not everyone is truly capable.
I’ve had to accept this within my own personal journey.
It’s destroyed many close relationships of mine.
But I know that my willingness to share my most vulnerable and intimate thoughts and feelings with all of you has helped bring about awareness to the many others who do want to understand what it’s like to live with Chronic and Treatment Resistant Depression, a debilitating Anxiety Disorder and Suicidal Ideations Every. Single. Day.
And I also know that by sharing my journey so openly and honestly has helped many more people feel less alone or ashamed.
So then why do I suddenly feel like I should stop writing? Stop sharing my most intimate thoughts and emotions? Why at one of the most vulnerable points of my journey do I want to stop sharing my story all together?
Because well, it’s not like I Cancer you know.
These were the words that I heard recently directed towards me during a conversation. Words that may not have necessarily been intended to be said with malice but words that can never be erased nonetheless. Words that dismissed the seriousness of my illness. Words that made me feel as though my need to create healthy boundaries and do what’s best for me are basically selfish because well you know, it’s not like I have Cancer.
Not everyone around you will understand your journey and maybe not everyone is truly capable. I’ve accepted this.
But I can no longer keep apologizing because of my “invisible” illness just because it can’t be detected through a body scan or an xray or a blood test and to be perfectly honest I’m just too damn tired to keep having to “defend” myself because I may not “look” sick.
Depression is NOT a choice. Depression just is, just like Cancer or Diabetes just is. They can’t be rated on a scale of any kind and quite frankly they NEVER EVER should be. They are all just truly horrible illnesses and should be treated as such.
I feel like I’ve been punched in the stomach and that my purpose in life to raise awareness, educate and bring comfort to others has been overcome by even more pain and guilt and shame.
I know I should just “let it go” and try and focus on the many lives I do touch and those who appreciate me for who I am and what I have to offer but sadly, having the ability to just “think positive” when living with Depression or Anxiety is one of the biggest obstacles we face.
I’ve been inconsolable for days now and have been left feeling like what’s the point of writing, sharing my journey or living life?
Just got home from a long and very invigorating walk with our friends.
As we passed this tree in the forest my girlfriend stopped to point out to me the words which had been spray painted on the tree that read “keep going”. She was certain it was there as a reminder from God telling me that I must “keep going”!
Upon our arrival home from our walk there was a beautifully wrapped gift of self-care on my front porch which was left for me by another incredible girlfriend of mine.
I am overwhelmed and beyond grateful for my amazing tribe. I am truly blessed by all the love and support and kindness I have in my life.
It’s okay to not be okay.
“There is no exercise better for your heart than reaching down and lifting people up.”
My head has been completely cluttered by loud and intrusive noises that won’t fucking leave me alone no matter how much I fight back. I’m in such a fog that I easily lose my train of thought mid sentence (and I even forgot my own address last night). I feel as though I am holding on by a thread right now. I am vulnerable and scared and I’m not sure how much fight I have left in me anymore.
My heart knows how loved and needed I am but I just wish my brain could get on the same page. Words can not express my endless gratitude for the overwhelming amount of support I’ve received since my post the other day.
Every message has been exploding with overwhelming kindness and empathy (the 2 greatest traits any human can have) and it warms my heart knowing how many people care about my well-being, feel inspired by my courage and enlightened by my honesty and truth. I’ve received private messages from people I haven’t spoken to in 30 years who understand what I am feeling and others whom I met just weeks ago.
I am especially grateful to one friend inparticular who literally dropped everything she was doing yesterday to sit with me for over 3 hours after I experienced a breakdown earlier in the day.
Last night though my pain got to be too much to bare and Rich drove me to emerg. I was in such a panicked state that I was certain I was having a heart attack. I have panic attacks often but this one felt different. Once ruling out that it wasn’t in fact a heart attack my hope was that they would give me a script for some Ativan which is used primarily to treat anxiety disorders, trouble sleeping and severe agitation. All of which have been causing my downward spiral.
It is also extremely addictive. I know this first hand because a few years ago I had an extreme addiction to the drug. I’d started hoarding bottles of them from doctors and other inpatient treatment facilities. I had 100’s of them in my possession and nobody knew, not even Rich.
I was no longer taking antidepressants at the time after more than 20 concoctions and lots of horrible and dangerous side effects led me to a further diagnosis of Treatment Resistant Depression. But Ativan wasn’t giving me those side effects. Instead it was numbing my pain and helping me sleep more. So I took more. I just loved the clouded feeling I was getting from it without all the added and dangerous side effects from the antidepressants.
I finally fessed up and came clean to my Psychiatrist at the time when my kids began voicing their concern to Rich that they were nervous being in a car with me. By now I had been taking 8 to 10 pills at one time every day. I truly don’t know how I was even functioning or still alive.
Now back to last night. Rich took me to the emerg at the brand new hospital nearby our home. It officially opened to the public only 2 months ago. It is affiliated with our other local hospital and I sadly recognized several familiar staff from the amount of visits to their emergency room over the years.
It was very clean. The floors and walls still looked fresh. I wanted so bad to come on here today and give this new hospital a glowing review but aside from the clean floors and fresh coat of paint I can’t really say anything positive from my own personal experience, especially given the amount of emergency rooms I’ve been to before to compare to this one during a crisis (and potential heart attack!). Even when I’ve been stripped of my belongings and my dignity left on the dirty floor or had security guards practically sitting on top of me I’d still put this experience below them all.
I was there for close to 7 hours and I observed a lot. I heard a lot too as they would call patients to the nurse’s station to give them their results before releasing them and I was in a room right across from it all (wouldn’t it be smarter to go talk to the individuals in their rooms, we are still in a Pandemic I thought and really do I need to hear everyone else’s diagnosis?). One of my most concerning observations though was when they called a lady to the desk (who’s mask was not on properly and they kept asking her to fix) to give her a script for an antibiotic and puffer to treat her pneumonia and then proceeded to tell the woman “but I’m pretty sure you probably have Covid”. Did they not test her for it? Did they not tell her maybe she should self isolate? Rich and I looked at one another in complete disbelief. SMH
Anyways back to my night which I returned home from just before 3am. I had an ekg and blood work done to rule out any issues with my heart. The doctor spoke to me about what else was going on at the moment as well including if I had an intended plan of carrying out a suicide. I was visibly shaken and he decided to give me an Ativan to calm me down and then he put in a request for their crisis team to come talk to me further.
We discussed my prior issues with Ativan which is clearly stated in my file as well as any other one of my doctor’s files who had once prescribed it to me. We also discussed how dangerous and addictive it is and that he would give me the one for now but was not comfortable giving me anymore to go home with.
The crisis worker eventually came to talk with me by which time the Ativan had kicked in and I was physically and emotionally exhausted and my mind was shutting down while trying to talk to her. By this time, Rich had left to try and get some sleep for a couple of hours.
The Crisis Worker asked me a whole bunch of questions, all standard to someone who is in crisis. Do you have a plan and what is your plan was her main concern and focus. The one positive of the night was that she had actually taken the time to go through my (lengthy) file before coming to talk to me so it saved me a lot of catching up on my history over the past 7 years.
My hope was still for her to let me have a few Ativans to take home with me so I can try and get some sleep and numb the severe and debilitating anxiety and desperate plans of suicide I’ve been experiencing. And to hopefully lift some of the fog. She spoke with the doctor and came back with a prescription for 5 Ativan for me but then she quickly regretted her decision.
She made me promise I wouldn’t go home and take them all at once or go to another hospital to get more. She also made me promise that I would call and speak with my Psychiatrist today and her last promise she had me make to her was that and I quote “don’t do anything stupid”. I know she meant it very lovingly!
I slept for a solid 3 hours last night within minutes of getting into bed thanks to the Ativan. That is huge for me, like Super Bowl huge. I have not gone to the pharmacy yet today (or gotten out of bed for that matter) to fill the script which I promise I will hand over to Rich who has been the keeper of all my meds for years as I am not sure I can be trusted right now to be perfectly honest. But a promise is a promise.
If you or someone you know is in crisis please seek help immediately.
We took a rest today from any strenuous hiking after our grueling 3 hour hike yesterday where Rich injured his knee, most likely when he went tumbling down the side of a cliff.
His injury from the fall further intensified any pain and tenderness he’s endured in his one knee for like forever; I’m talking long before the #summerofrich ever began.
For years now he’s complained to me about muscle strain in his knee but no matter how much I’ve tried, has refused to speak with his doctor about it or at the very least try wearing a knee brace while hiking or doing any other strenuous activity.
But today he finally relented and took his knee brace for a test drive and a leisurely stroll with Maggie as well.
I’m not quite sure if I’ve ever told you this before, but Rich is the most stubborn person I know!! However, being stubborn isn’t always such a bad thing because stubborn people are often known to embody “strongly-felt” emotions and care more deeply for others; characteristics of Rich’s I wouldn’t change for the world.
I’m sure you’ve all heard the news by now coming from the Olympic world.
Simone Biles is probably one of the most recognized and celebrated Olympic athletes in the world today and a true mental health warrior in my eyes.
I one thousand percent support and admire Simone’s decision to step away from the podium for now in order to focus on her mental well-being but her decision to do so has been met with so much ridicule by the naysayers who are sitting on their butts, most likely from the comfort of their couch, hidden behind their smartphone screens, tweeting out and calling her a quitter or worse.
It brings us right back to the same place we keep ending up because had Simone broken her ankle during her Olympic performance we would not be having this conversation and instead we would all be empathizing with her and cheering her on as she rehabilitated and got back to the vault. But taking a step back to focus on her mental health never seems to be a good enough reason to the naysayers.
Mental illness and PTSD can creep up on you ever so slowly and often out of nowhere. She deserves to be recognized for her strength and courage and not criticized and judged.
You don’t get to the level that Simone Biles has without being mentally tough. She is far from a quitter. She is taking care of her mental wellness and that makes her worthy of an Olympic gold medal in my eyes.
And when she returns, and I believe she will, she will show all those naysayers sitting on their butts from the comfort of their couch what it takes to be a real winner.
Many people may not fully realize or ever truly understand the trauma and possible triggers (including performing in the Olympics) that Simone has had to overcome being that she was one of MANY young athletes who suffered YEARS and YEARS of sexual abuse at the hands of their “trusted” Olympic Team Doctor “Larry Nassar” who is now thankfully serving a prison sentence of over 100 years for his crimes.
Mental illness and PTSD are both VERY real and VERY serious. If she is not mentally strong enough to be able to focus on her performance then she could most definitely hurt herself physically and possibly destroy everything.
Self-care is mental wellness and it doesn’t matter if you can’t physically see her injury; it still matters, even more.
Sadly though, we live in a world where people judge others on how much money they have, what kind of career path they choose, how big the house is that they live in, how smart they are and even by the amount of medals they may have sitting on their shelf.
But what if for just one second we all took a “step back” and focused on a world where people didn’t see it that way and instead only cared that you are happy, healthy and kind.
Don’t we all deserve that kind of gold medal treatment?